Subject: Our petition 'Vestibular for change' - Change. Org "How worldwide disclosure of a clear guideline/protocol can turn a lack of in-depth understanding of balance disorders today into early diagnostic evaluation and effective management of vestibular disorders tomorrow."

+ 100 million people worldwide suffer from severe vestibular disorders, with high risk of falls and injuries. This seriously handicaps their lives, disabling them of doing routine daily activities.

All right... head out of the clouds and both feet firmly on the ground now.
It's just us: Donia, Josiane, Iris and Tania. As a fearsome foursome we might look a bit kooky,But to be honest we couldn't be more serious about this...

On Thursday evening, November 28 2019, the (multidisciplinary) Belgian Study Group on Vestibular Disorders (BSGVesD) met for the first time at the Royal Academy of Science and Art in Brussels. Their mission was to write an overarching guideline to support the diagnosis and treatment of vertigo and dizziness, based on the latest scientific findings...

I am 26. As a little boy I was already struggling with balance problems.
I think I was 10 years old when, in the middle of the night, I suddenly woke up with my world shaking violently and me in a total panic. I could not lift or move my head and was intensely nauseous.

Day of silence


Today Belgium holds the 'day of silence'. On their website I read about their 'annual campaign to address the value of slowing down, stillness and qualitative attention in the Flemish, Brussels and Dutch community'.

People are more than their illness, but including your vestibular illness into your identity, can be an emotional burden for a patient.

Do you know this vestibular disorder that hits older people? Until today almost no one ever heard of it.